Back to the point. Lots of time on my hands.
So I thought that looking for fibromyalgia/chronic fatigue support groups would be a super awesome idea, right? So I spent yesterday searching. Particularly of the young adult sort. After a few hours of searching, I found a really cool facebook page and even a social networking site for people under 40 with neuro-immune illnesses such as:
Myalgic Encephalomyelitis, Chronic Fatigue Syndrome (what I've got), Chronic Lyme Disease, Fibromyalgia (also what I've got), Rheumatoid Arthritis, Lupus, Sarcoidosis, Reflex Sympathetic Dystrophy, Multiple Sclerosis, Multiple Chemical Sensitivity, Mold-Related IllnessShould be awesome, right?
Not.
Okay, so it IS awesome. All these people who feel so isolated because these diseases make us sick and home-bound so much of the time (coughcough--see:mylife--coughcough) being able to "hang out" sort of, with other people who totally are going throught the same sort of stuff. It's awesome.
I can't do it. It made me so ridiculously depressed. And I don't even know why. I guess I like to live my life just floating through it with as cheerful an attitude as I can, not over thinking anything. If I start overthinking it, that's when I start getting sad. I'm not avoiding it, oh no, let me tell you. No cop out's here. I just don't want to center my life on my health problems--- at least, not any more than it is. I don't want my fibromyalgia and chronic fatigue to define who I am, and if all I do is associate with people with the same problems, talking about it, maybe not even complaing about it, but still focusing on it... I don't want my life to be like that. I want my health problems to be part of my life, not my whole life.
So, I was going to change this blog up to be more of a "fibromyalgia diaries" and be an uplifting tale of a young adult and how she deals with the daily trials of health issues... but screw that. I am who I am, I write what I write, and I'm happy as I am. No need to be a saint.
No comments:
Post a Comment